
I hadn't meant to get into the kids thing so soon. This was supposed to be a blog about me, after all, but it's hard to find myself among all the extranea of my life and it's even harder to tease out which parts of my life are really mine and which fall more appropriately into the category of their lives. They don't like it when I talk about them. Kids are nothing if not hypocrites, and that's true from their conception right up to my grave. I kissed my life goodbye when Kelly was born in July of 1987, and if I'd had the slightest clue of how much I was about to sacrifice then I would have put a little more passion into it. Kelly as only a few days old when I saw the life I used to have vanish in front of my face and by then it was too late to mourn the life I was leaving behind. A quick peck on the cheek and I was running headlong into the storm, looking past the clouds for the rainbows.
I'm only just now coming to understand that while I looked for my pot of gold at the end of the rainbow I left more than my old life behind in the storm. I lost myself, too.
That being said, I should launch into a bold statement affirming my own self and my own life separate from my childrens' lives, but every single time I try to do that one of them grabs me by the throat (it's always the same one, btw) and insists that I focus on them again. My oldest child, the problem child, is 22. She was born screaming so loudly somebody came from another room to shut the door, and she still hasn't shut up. She's been screaming at me over the phone for the last three years since she ran away from her college assignment mid-semester of sophomore year, without so much as a post card to her father and I to let us in on her "decision," leaving us stuck paying tuition so that she could fail all her classes and ruin any hope she had of getting into any other school, and then stuck with a whole lot of trouble after she allied herself with a self-described drug dealer and hitman for the Mexican Mafia who drained her bank account then stole her car, leaving her on a street corner in Indiana with ten cents in her pocket and the clothes on her back.
Thanks to the excellent (really!) social services in Ohio, especially as compared to Massachusetts, she was able to call somebody else to arrange for her to go to a domestic violence shelter where she ranted and raved and fought and swore at everybody, finally earning herself the label I'd been trying to pin on her since she was ten years old -- mentally ill.
Ironically, she resents me terribly for the testing I arranged (a simple evaluation at school - she wouldn't comply with anything else), the doctors I took her to see (she takes enormous pride in the ways she manipulated them so I looked like an incompetent parent), or the medications (1/2 teaspoon of liquid prozac...) that I "forced" her to take (I never once even watched her take it...). She's medicated now and she complains that it's expensive - but if she'd listened to me when I explained and explained and explained why those tests and those doctors and those medications were important instead of spending her energy and her intellect trying to prove that she didn't need them, then she might not even need the heavy duty stuff she's on now. and, furthermore, that she may have been eligible for SSI disability payments at age 18 which would have simplified her life in so many ways. If nothing else, she'd be eligible for medicaid instead of having to rely on her Walmart insurance policy, which doesn't cover mental health, and the thinning patience of Ohio's cash-strapped social services. But you can't tell her that - she doesn't even recognize the connection between the two things.
It wasn't just about the label, because she really did have something different, and it was something frighteningly familiar. I'd been fascinated by autism since I was an adolescent in the 70's when they first started talking about it. I think maybe I saw myself somewhere in that bubble or maybe I had a premonition that Kelly was coming into my life. I continued studying the condition when I was seeking my Masters degree at Wheelock (early childhood education, because I had always wanted to be a teacher. Always.) Today many of us recognize that children who can explain the composition of an atom at age two are not geniuses to be celebrated, but train wrecks waiting to happen. But nobody understood that 10 or 15 years ago and, as long as my kid wasn't causing any trouble at school or doing poorly in her classes, what did it matter that she had no friends or that her arms were sliced to ribbons? I knew what Aspergers Syndrome was years before it became the most sought after diagnosis in the A/B school district (where everybody is simultaneously gifted and in need of special services...) I made it easy for them - I told them what to look for and where to find it, but budgets are tight and one more kid in the SPED system might bring about the end of free coffee in the administration building, so they ignored what they could. Kelly was easy to ignore, at least for everybody but me. She would never let me ignore her and there was no end to her manipulations. I would forever be tangled in her web.
I've always found my labels comforting in a way. After growing up hearing everybody tell me what a disappointment/screw-up/stupid, lazy-assed, useless kid I was it was reassuring to discover that I was not really any of those things. Bi Polar Disorder, Sauvant syndrome, Attention Deficit Disorder, Obsessive Compulsive disorder,...music to my ears! There were names and reasons for things that were "wrong with me," and they didn't point to the very core of my being. My symptoms were not character flaws to be ridiculed and berated for. I was defective, but I came by it honestly. It was all wired into my brain at birth. Knowing that wouldn't change the way my family looked at me, but it might provide an extra layer of protection against their hurtful comments and insensitive behaviors. So it was never about the goddamned label when it came to Kelly, either. It was about finding out what was going on so we could get control of it before she left home. It was about her not having to wait until she was 40 to stop despising herself for being so inadequate. It was supposed to be about her understanding herself and learning to live in a world that has little patience for non-conformity.
And maybe, just a little bit, it was about redemption for me. Maybe I could finally feel just a little bit more worthy of being part of the Mommy pack. Maybe I could finally feel just a little bit more worthy of the space I took up on this planet. Is that so wrong?

